The Fibromyalgia Care Society of America is committed to three core service provisions to systemically impact the lives of those living with fibromyalgia while also addressing the lack of education and coordinated care within the medical community. Our three service areas include: Centers of Excellence, FibroCares and Empowerment Groups.
Centers of Excellence:
The Center of Excellence model is not new to the care of diseases ranging from cancer to cystic fibrosis. The approach is simple: work with leading medical colleges and teaching hospitals throughout the country to offer elite multidisciplinary care. As such, the FCSA is currently working with several leading hospitals throughout the country to develop the standards of care model that will be utilized to care for those living with fibromyalgia. The FCSA will launch its Center of Excellence Program with a dedicated facility that will offer training and coordinated care to individuals across the country. This facility will be the model replicated throughout the country in subsequent years. At an FCSA Center of Excellence you can expect to find a team of medical and care professionals who have the most up-to-date education on the care of fibromyalgia. The care team will include nutritionists; holistic care management, physical therapy, mental health support and additional services. Most importantly, individuals who are underinsured or have no insurance will be able to receive care and support regardless of their financial capabilities.
At these world-class facilities, patients benefit from expert neurologists, mental health specialists, therapists, counselors and other professionals who have deep experience working with families affected by fibromyalgia and who work collaboratively to help families plan the best fibromyalgia care program.
An estimated 10 million+ people are living with fibromyalgia. Current services available offer support groups and limited medical care. Many individuals living with fibromyalgia battle with anxiety and depression associated with not being understood by their family, friends and employers. FCSA’s FibroCares program will offer these individuals concrete supports such as help around the house through volunteers, employment counseling and placement support, emergency food and rent support, a dedicated hotline managed by a trained professional who can help them navigate the options available to them and a host of other referral based care.
FibroCares is an innovative approach to caring for the community which will offer a host of services such as:
Emergency Financial Support (via FEMA)
Individualized support through a hotline
And other referral based care.
Traditionally, support group services are offered to help individuals cope and understand a diagnosis. The reasoning, based on data that is over 30 years old, suggests that these groups help individuals address their fears and concerns in a group setting that can be peer-led or led by a social work professional. While support groups are designed to support cognitive reflection individual often feel that support groups are only effective during the season but are not provided with tangible tools to concretely respond to their concerns.
In response to the minimally effective existing support group model, the FCSA has launched a revolutionary approach to support groups utilizing the principals of cognitive behavior therapy and group therapy sessions to offer attendees a concrete response to the emotions and challenges they are facing as a result of living with fibromyalgia. Each group is lead by a trained cognitive behavioral therapy facilitator who designs each topic to be addressed throughout the course of several months. At the beginning of each session, the goal and objectives of each 60 minute session will be clearly stated and the facilitator works to ensure each member is able to respond to the goals and objective – most importantly, the facilitator works to ensure each individual is empowered utilizing the specially designed approach.
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